FIFTY PERCENT of the proceeds for the Chiari Malformation Awareness digital scrapbooking products will be donated to the Chiari & Syringomyelia Foundation (csfinfo.org) for as long as all the products are offered for sale.
Information about Chiari and its related disorders including Syringomyelia and Ehler’s Danlos Syndrome, among many, many more, can be found at csfinfo.org. On the CSF website, a wealth of information can be found not only for patients and their families, but for physicians as well. Your donations are what help keep this education going.
The kit is sold as a big bundle for a discount and each portion is sold individually. Most of the individual portions are commercial use only.
To anyone who knows me, they know how important research and education for Chiari Malformation is. I am a zipperhead. For those who don't know, it is the slang term given to those of us who have had brain surgery due to Chiari Malformation. The stitching and staples up the back of our heads looks like a zipper.
Chiari malformation is a serious neurological disorder. The disorder itself is rough, and the brain surgery to treat it takes years of recovery, and we will never be the people we were before Chiari struck. It's not a very well known disorder, therefore, the more awareness that can be raised, the better for those who currently know they have Chiari and for those about to learn they have Chiari.